Stories of Lung Cancer
We tell ourselves stories in order to live. ~Joan Didion
Lung Cancer Resources
News from the EGFR Resisters
EGFR Resisters October Newsletter: Advocacy, research updates, clinician interviews, and more!
Past issues of their monthly newsletter are here. The EGFR Resisters also has an active Facebook group.
From the EGFR Resister's March Newsletter: EGFR Lung Cancer Progression (See below)
Self-Advocacy
Self-Advocacy: A Cancer Survivor's Handbook
It’s crucial that patients and their close ones understand how to interact with the medical system in order to ensure you get the care you need.
The National Coalition for Cancer Survivorship has created a free publication to help you do just that. Download or read it at their site.
Triage Cancer: Free Education for Self-Advocacy
Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. (Don’t miss this site— it’s a wealth of information!)
NIH's National Cancer Institute : Lung Cancer
“Lung cancer includes two main types: non-small cell lung cancer and small cell lung cancer. Smoking causes most lung cancers, but nonsmokers can also develop lung cancer. Explore the links on this page to learn more about lung cancer treatment, prevention, screening, statistics, research, clinical trials, and more.”
NCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its specific research capabilities, programs, and initiatives.
LUNGevity: A Patient Support Community
“LUNGevity seeks to empower patients to be active decision makers in their treatment process through our extensive educational resources, online peer-to-peer support, and in-person survivorship programs.
“LUNGevity is changing outcomes for people with lung cancer through research, education, and support.
“We are dedicated to funding scientific research because the link between research spending and improved survival is clear.
“LUNGevity initiatives position us as thought leaders in the lung cancer advocacy community, providing programs and driving change for those with lung cancer today and in the future. “
Resources to Help You Navigate Your Specific Kind of Lung Cancer
“The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. By defining and advancing high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.”
For health professionals: NCCN Clinical Practice Guidelines
Patient Resources: Guidelines, Webinars, Support
Publications for patients
Founded by patients and survivors, GO2 Foundation for Lung Cancer works to change the reality of living with lung cancer by ending stigma, increasing public and private research funding, and ensuring access to care.
World Cancer Research Fund International
“World Cancer Research Fund International is a leading authority on cancer prevention research related to diet, weight and physical activity.
We are a not-for-profit organisation that leads and unifies a network of cancer prevention charities with a global reach. These charities are based in the USA, United Kingdom, Netherlands, and Hong Kong.”
Their report, Diet, Nutrition, Physical Activity and Cancer: a Global Perspective, is a fascinating and comprehensive review of data about the connections between these things and cancer.
WCRF International Cancer Prevention Recommendations
“Our Cancer Prevention Recommendations are the conclusions of an independent panel of experts – they represent a package of healthy lifestyle choices which, together, can make an enormous impact on people’s likelihood of developing cancer and other non-communicable diseases over their lifetimes.”
The American Lung Association
The American Lung Association “The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease, through research, education and advocacy.”
National Cancer Institute
National Cancer Institute— Lung Cancer “The National Cancer Institute (NCI) is the federal government’s principal agency for cancer research and training.” Use the resources on this page to learn about lung cancer treatment, prevention, screening, statistics, research, clinical trials, ways of coping and more.
The American Cancer Society
The American Cancer Society “At the American Cancer Society, we’re on a mission to free the world from cancer. Until we do, we’ll be funding and conducting research, sharing expert information, supporting patients, and spreading the word about prevention. All so you can live longer — and better.”