Stories of Lung Cancer

We tell ourselves stories in order to live.Ā  Ā  Ā ~Joan Didion

Ya Can’t Make Me Feel Better By Saying “We don’t know anything for sure”

Tomorrow is the EBUS. I report at 7 a.m. and will get to go home at about 12:30. After the pathology studies come back in 5-7 days, we will have enough information– we hope– to move to the action part of the program. The surgeon has already written to me that the next likely steps will be to meet with medical and radiology oncologists.Note: I said likely. I am not wedded to any forecast.

But I think it’s important to have a realistic assessment of the situation, which means combining all the stuff that’s been discussed so far and then learning as much as possible. Because the more out front with the realities we are, and the more information we have, the better we will be able to cope.
For example, M and I took a nice walk yesterday and talked about current statistics on five year-life expectancies of different stages of lung cancer. These are not great. And, there’s nothing to be done about it, except to know what the studies have shown (and that there are lies, damn lies, and statistics šŸ˜‰.) But you know what? I feel more centered today than I did over the entire weekend.
You see, to know this stuff is not the same as to lie down and give up.
Do I sound defensive? It’s just that it’s hard to have people try to console me with “well, we really don’t know anything yet.” Because here’s what is currently written down.
T2b-4.5cmN2M0
Stage IIIa
And, it’s possible the MRI results will change these numbers, not for the better.
So. Let’s be real. This is pretty grim. The treatments that I most likely face have “severe side effects.” I am going to need everyone who cares about me– hell, anyone who’s ever met me– to be in my corner. Prayer, pleas to the Universe, positive vibes, cards, emails, comments here– I appreciate all of these more than you can know.
When I learn something new, it usually flattens me for a day or two, but then I wake up and feel centered again. So that’s good. And, while I may blather about details or make weird jokes, those are all ways of coping. I appreciate a shared laughter or even empathetic silence.
Think of me tomorrow.
Here’s how to interpret my numbers.
The information is from the NCCN Lung Cancer Guidelines–Early & Locally Advanced (National Comprehensive Cancer Network).Staging system
The AJCC (American Joint Committee on Cancer) staging system is used to stage lung cancer. In this system, the letters T, N, and M describe different areas of cancer growth. Your doctors will assign a score to each letter.
The T score describes the growth of the primary tumor. There are seven main scoresā€”TX, T0, Tis, T1, T2, T3, and T4. The more serious the growth the higher the T score.

The N score reflects how far lung cancer has spread within nearby lymph nodes. There are five scoresā€”NX, N0, N1, N2, and N3. The more serious the growth the higher the N score.

The M score tells if thereā€™s cancer spread to body parts far from the lung in which it started. M0 means the cancer has not spread to distant parts. M1 means the cancer has spread to distant parts.

Numbered stages
The TNM scores will be combined to assign the cancer a stage. The stages of lung cancer range from stage 0 to stage 4. Occult carcinoma is also included. Doctors write these stages asā€”stage 0, stage I, stage II, stage III, and stage IV.

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Stage 0
Stage 0 means there are abnormal or cancer cells in airways. The cancer cells havenā€™t grown into lung
tissue or spread outside the lung.
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Stages Iā€“III
Stages I through III have grown into lung tissue. Some have spread to nearby lymph nodes. They have not spread to body parts far from the primary tumor.
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Letters and sometimes numbers are used to further group the stages. The subgroups give more details about the extent of the cancer. Stage I has four groupsā€”IA1, IA2, IA3, and IB. Stage II has two groupsā€”stages IIA and IIB. Stage III has three groupsā€”IIIA, IIIB, and IIIC.
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Stage IV
Metastatic lung cancers have spread to body parts far from the primary tumor. Stage IV is metastatic cancer that was present at diagnosis. It is grouped into stages IVA and IVB. Over time, other stages of
lung cancer may metastasize. Lung cancer tends to spread to the brain, adrenal gland, and to the lung
without the primary tumor.

Letterboard image by hudsoncrafted from Pixabay

Blackboard image by bluebudgie from Pixabay

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And I love you. I'll take a rain check on that hug….

I read every post and I'm grateful for them. You are courageous and strong- not all the time I know. You are in my thoughts and prayers- yeah- those too! I wish I could jump through this screen and find you on the other side to hug. Thank you for being so very present and willing to share as you travel this uncertain path. I love you my friend.

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